Long COVID resources: where to find reliable help

When you are newly diagnosed with long COVID, finding reliable information is harder than it should be. Credible resources exist alongside private clinics making unsupported claims, supplement sellers promising relief, and practitioners offering expensive cures to people who are desperate for answers.

This page is a curated starting point. Every resource listed here is patient-led, research-backed, or run by a recognised charity.

NHS, long COVID overview
The NHS’s own pages on symptoms, diagnosis, and treatment. A useful link to share with family, employers, or anyone who wants an official starting point.

NICE NG188, long COVID guideline
The UK clinical guideline covering ongoing symptomatic COVID-19 and post-COVID-19 syndrome. This is the document that underpins NHS long COVID care.

These organisations provide support services, educational materials, and advocacy on behalf of people with long COVID.

Long Covid SOS
A UK patient-led charity campaigning for recognition, research funding, and better treatment. One of the earliest long COVID advocacy organisations established in the UK.

Long Covid Support
A UK charity acting as Secretariat for the All-Party Parliamentary Group on long COVID. Runs global online support groups with tens of thousands of members.

Long Covid Kids
A UK-based international charity focused on children and young people. Children’s long COVID is particularly underserved in mainstream coverage, and this organisation fills a significant gap.

Solve M.E.
A US organisation focused on research and advocacy for both ME/CFS and long COVID.

#MEAction
A global patient-led advocacy network covering both ME/CFS and long COVID, with chapters across multiple countries.

Research organisations tend to distinguish more carefully between promising and preliminary findings than general health news outlets. Their updates are often a better source of scientific news than mainstream coverage.

Patient-Led Research Collaborative
An international group of researchers who themselves have long COVID. Published the earliest detailed research on long COVID symptoms and continues to shape the research agenda.

Open Medicine Foundation
Funds research into post-infectious illnesses, including long COVID, and publishes plain-language updates on its work.

Bateman Horne Center (US)
A clinical and research centre covering ME/CFS and long COVID, with educational materials for both patients and clinicians.

Identifying your personal triggers is easier with a consistent tracking method.

Visible
A wearable-linked app designed for people with long COVID and ME/CFS. Tracks heart rate variability and can flag when you are approaching your limit.

Bearable
A flexible symptom tracker for logging activities, symptoms, medications, and mood in one place. Works well for pattern-spotting across weeks or months.

Paper diary
A basic notebook works well for many people. Recording daily symptoms, activities, sleep, and triggers is often enough to identify patterns over time.

Connecting with others who have long COVID can reduce isolation and provide practical insight that clinical resources often do not cover.

r/covidlonghaulers on Reddit
One of the larger online long COVID communities. Covers practical questions, symptom management, and general support.

Long Covid Support online groups
The Long Covid Support charity runs large global online support groups. Access is free through their website.

Facebook support groups
Groups vary considerably in quality. Those run by or affiliated with the established charities above tend to be better moderated.

A note on community spaces

Online communities can be valuable, but they can also be draining, particularly if reading about others’ experiences worsens your own. For long COVID specifically, they can also get caught up in broader political debate. It is reasonable to step back when you need to.

Not every resource presenting itself as long COVID support is reliable.

Be cautious of the following.

Some supplements may help individual symptoms in some people, but there is no validated supplement stack for long COVID. Sellers claiming otherwise deserve scepticism.

There is no cure yet, so a clinic or practitioner promising one is either misinformed or has a financial interest.

Functional medicine clinics often charge heavily for food elimination, specialised testing, or detox programmes with limited evidence.

Programmes framed around pushing through symptoms have caused documented harm in people with long COVID who experience post-exertional malaise.

Content framed around political positions on COVID-19, in either direction. Stick to sources that talk about the condition clinically.